Our main event of the year is Family Day, which brings together families from all over the Country. It’s a day of fun and connection. A day away from appointments. And a day of fun for the entire family – siblings too!
We sometimes hold, pay for and publicise local family days but we rely on our members to organise them. We have had some really successful ones in Scotland and the South East!
If anyone would like to organise a local family day in their area please contact us and we will support financially.
Our annual Kabuki UK Family Day will take place in June 2027 – exact date to be confirmed. This much-loved event brings families affected by Kabuki syndrome together for a relaxed day of connection, activities and shared experiences.
Tickets include park entry, lunch and refreshments. Children attend free and everyone in the Kabuki community is welcome.
Our Information Day is designed for parents, caregivers, and adults living with Kabuki syndrome, providing access to top Kabuki syndrome clinicians. We appreciate everyone who participated in our 2024 Information Day.
All our events are funded by the generous donations we receive each year.
Without the support of our UK community, these events wouldn’t be possible.
