About Kabuki UK
About Us
Founded by dedicated volunteers who are parents of children with Kabuki syndrome, Kabuki UK is here to support and address the challenges faced by families dealing with this rare condition. Since 2012, we have been the first and only UK-based organisation providing crucial support and advocacy for those affected by Kabuki syndrome.
Our mission is to raise awareness of Kabuki syndrome, offer guidance and support to newly-diagnosed families, and create opportunities for connection and joy through our events. We strive to foster a community where families can share their experiences and find comfort in knowing they are not alone.
Kabuki UK's Aims
At Kabuki UK, our mission is centred around several key goals that drive our efforts to support families and enhance understanding of Kabuki syndrome:
Global Reach of Kabuki Syndrome
Kabuki syndrome affects individuals and families worldwide, which is why we collaborate closely with international advocacy groups and researchers. By partnering globally, we aim to raise awareness, share vital research insights, and explore potential treatments, all of which enhance the quality of life for those living with Kabuki syndrome in the UK.
Through these partnerships, we bring the latest information and support to our community, ensuring that no one faces this rare condition alone.
